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My name is Della
In the summer of 2022, I noticed my flip-flop was dragging. In April 2023 I was diagnosed with ALS. This is my story.
In the summer of 2022, I noticed my flip-flop was dragging. In April 2023 I was diagnosed with ALS. This is my story.
ALS affects the control of the muscles needed to move, speak, eat, and breathe. There is no cure for this fatal disease. The mean survival time with ALS is two to five years.
Become an ALS Advocate. ALS is not uncurable, it's underfunded.
While walking her dog, Della noticed her left flip-flop was dragging. That changed into a limp tha became worse over time.
Della's limp got worse and she found her leg had spasms and cramping.
Della's doctor asked Deella to walk on her heal, she was unable. She also asked Della to hop on her left foot, but again she was unable. She was referred to a nuerologist.
At her first meeting with the neurologist he did an extensive exame. He noticed Della had a positve Babinski reflex - a sign on ALS. She was referred for a MRI and an EMG
Securing an appoinment for an ENMG was difficult. Della would have wait until May to receive the test.
As Della waited for her appointments her limp was getting worse. Her doctor suggested she be admitted to the hospital ti exoidite testing. After 2 days Della was diagnosed with ALS
Our speech fro the ALS One Snowball. Watch and fall in love with Matthew.
Della's children are running in the Falmouth Road Race on Aug 17th. Please support them to reach their goal of raising $30,000 for ALS One
Della's nieces are running in the Boston Marathon to raise funds for ALS research. Please support their goal of raising $17,500. Then cheer them on at the finish line.
ALS is often referred to as the "rich man's disease" because it is estimated that a family will spend $250,000 out of pocket to care for and treat a person with ALS. Della's goal is to be able to stay in her home with her family. All contributions go towards this goal.
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